The capital letter “C” church has been a part of my life since I was about eleven years old. I have worked in churches, volunteered with ministries, gone to seminary and surrounded myself with Christian fellowship. While I have been active in many different churches over the years, I have more often than not felt like I was on the outside looking in. To cut to the chase, I was born with Muscular Dystrophy, a physical disability that has affected every part of my life. Though, my struggles are not out of the norm for 1 in 5 Americans. If you were to examine the statistics you would quickly be overwhelmed by the sheer amount of people with disabilities of all ages that are being left on the outside of churches all around the world.
The question I want to ponder in this blog is: What exactly would it look like to be meaningfully included in a faith community?
I want to start with what it does not look like:
It doesn’t look like people avoiding eye contact. It doesn’t look like being forgotten about or minimized to just the state of my physical body.
Not being meaningfully included is like the scene in Mark 2. Many of you know the story of the paralyzed man who was lowered through a roof to meet Jesus.
Something I didn’t realize until recently is that it wasn’t stairs blocking the man from meeting Jesus and being a part of something world changing. In fact, scripture clearly states it was a crowd blocking him. A crowd of people, unaware and uninterested, blocking this man from a potential that was unimaginable.
For people with disabilities to feel accepted, welcomed and desired it takes a few of those people in that crowd to become a community. When the crowd stops standing in the way and begins working together true transformation happens.
In my experience to be meaningfully included means for others to see my potential when I only see my brokenness. It is to have my name asked and to have my story heard. To be meaningfully included is to be treated like a human.
While for me there are still many instances where stairs are a major obstacle to me being meaningfully included, to me the complacent and disinterested attitudes are the biggest barriers.
It is a rare occasion wherein programs, lessons and buildings are planned with disabilities in mind. Stages are even more rarely designed with the thought that someone with a disability would ever lead or speak on it.
In fact even when I was ministering to students, it was an afterthought to me! I’d plan the lesson, write the illustration and map out the activity just to realize I didn’t even take into consideration my own limitations. How backwards is that? I don’t think that is what Paul meant by being everything to everyone.
But, it’s not all bad, because if there wasn’t hope I probably wouldn’t be typing away on my laptop. I have been meaningfully included. One instance was so powerful it is still shaking up my life even though it occurred over four years ago.
I was working at a church in San Antonio doing full time college ministry. I knew my wheelhouse. College kids were easy. They liked video games, coffee and long talks about Jesus. No problem, I excel at all those things. But there was a Youth Director at this church that became a fast friend. We’d grill meat and watch every sport under the sun. It wasn’t long, maybe a few weeks after my arrival, that he began inviting me to come spend time with him and the middle schoolers.
I was sick to my stomach when he first invited me. I smiled and in my most gracious voice declined. On the inside I was screaming “Dude are you out of your mind? Me, with a bunch of wild middle schoolers, running around being hyper and active and fun? You DO realize I use a scooter right? I don’t play sports, I can’t do this, I can’t do that. This is a disaster waiting to happen.”
The Youth Director then proceeded to invite me every single week for the next month. He promised food and fellowship. Finally after a month of invitations I caved in to his persistence. Nerves a wreck, I showed up and ate hot dogs and talked about Maundy Thursday with ten eighth grade boys.
I thought I would just have to make it through those two hours and then never have to hear his offer again once I explained how I’m not a fit to work with youth.
If y’all could have seen his smug grin when he watched me fall in love with working with those kids. Four years later I’m obviously no longer at that church, but I still get weekly texts from the many high school and middle schoolers. I had no idea that potential was in me.
I had no idea that there was a gifting and strength to my story that could connect to kids that I had grown up unable to connect with.
Side note: Kids, no matter the age, love sitting in rollie chairs and holding onto the back of scooters like a train. Extra side note: Get a parent’s permission and have the kids sign a waiver before you do something like that.
But a faith community saw it in me when I didn’t see it. And in this scenario, once I got inside the house and saw what the crowd was staring at, it changed my world.
What I want to leave you with today is just a few pieces of advice:
- Invitation is at the heart of faith communities, do not be afraid to invite those with disabilities to serve, and to share their strengths. Which of course means you need to invite them into your life so that you may get to see their potential yourself.
- This is off topic, but I feel like it needs to be shared. Disability is draining. It consumes energy, health and finances, goodness is it expensive to be disabled. I will be the first to say that I do not want to be seen as a charity case, but those I trust, who know me authentically and intimately and not just as someone to be served, I am grateful to share my struggles and needs with them. It is not easy to support and invest in someone with a disability. But the best things in life are never easy. Get to know people’s needs, but first get to know them.
- Finally, become a community. Lay down the simplicity of being a crowd. Make your plans with an array of abilities in mind. If you work with youth, you already know not EVERY kid likes dodgeball. If you are preaching, hopefully it’s not news to you that it doesn’t take having a disability or learning difference to lose focus on what is being said. Every obstacle has an accommodation.
Maybe accommodations shouldn’t be an overwhelming word, maybe it shouldn’t be such a dirty word, but an opportunity to let your creativity run wild, to try something new (I know new can be scary). What if by accommodating for a few you give way to something more potent, and more world changing than ever before?
MATT CURCIO’S BIO
Matt Curcio is local to Nashville, TN. A speaker, writer and advocate, Matt founded his nonprofit in 2015, Break The Roof. The mission of Break The Roof is to inspire and encourage congregations and Christian communities to embrace full inclusion of people with disabilities. For more information go to breaktheroof.org